The Association also used Ice Bucket Challenge money to invest in more researchers, expanding the network of scientists working to develop treatments and a cure. The ALS Association committed nearly $90 million around the world in research funding between 20, including $81.2 million across 275 research grants in the United States and an additional $8.5 million internationally. Researchers used their funding for new clinical trials to test potential treatments, and the Association’s clinical network saw a 50 percent expansion, RTI found. The Association’s investment of Ice Bucket Challenge funds had a direct impact on the fight against ALS, including the discovery of five new genes connected to ALS. RTI evaluated the Association’s grant records and NIH funding records, data from research projects funded through Ice Bucket funding and surveys of ALS researchers worldwide to understand the impact of Ice Bucket Challenge investments. “Five years after the Ice Bucket Challenge soaked the world, the pace of discovery has increased tremendously, bringing ALS researchers closer than they have ever been to real breakthroughs in diagnosing, treating, and eventually curing this disease,” said Calaneet Balas, president and CEO of The ALS Association. RTI International is an independent consulting firm that helps governments, businesses and nonprofit organizations around the world objectively analyze programs and measure impact. The report from RTI International documents and quantifies the outcomes of spending from the $115 million dollars in donations the Association raised through the Challenge. During this time, ALS researchers made scientific advances, care for people living with ALS expanded and investment in disease research from the federal government grew. (June 4, 2019) - An independent research organization reported that donations from the 2014 ALS Ice Bucket Challenge enabled The ALS Association to increase its annual funding for research around the world by 187 percent.
New report shows significant increases in ALS research spending, researchers funded, collaborations, dollars leveraged
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